This is a long post, but I have a lot to reflect on, and writing it all down helps with my process….
Moses was in the hospital for 12 days. We have quite a pattern going on.
What is it about November?!?
During Remembrance Day weekend, I felt like uneasy as I remembered that it had been essentially a year since Moses’ last hospitalization in November 2012. (Interestingly, it was this very same weekend in 2011 that Moses was hospitalized). On November 10, I sent a friend an email:
I feel that our family is pushing through something right now / breaking a cycle of spending Nov in the hospital. I think saying no to IV antibiotics twice a couple of weeks ago helped us to break the cycle. Still, I feel that I’ll have a big exhale after November is over.
And later that evening as DH and I snuggled in bed, I told him that I couldn’t wait to get through November….
Day 1 – November 11 (Remembrance Day)
We woke up with a start at 5 am to Moses’ screaming. He came into our room screaming and hysterical. My hip, my hip, my hip!! He was screaming so much, it was like he was having a night terror. We didn’t know what was going on. Had he broken his hip during his sleep? Associated with his diagnosis is the propensity for fragile and broken bones. We immediately made plans to bring him to the ER. DH went to pick him up and Moses screamed even more. DH carried him downstairs and even DH was shaken visibly. DH was scared. We had never seen Moses in this much pain. We called 911 (something that we have never had to do, despite our many emergencies and trips to the hospital).
By the time the paramedics arrived, Moses told us that the pain had moved to his abdomen. As a back story, Moses has been intermittently complaining of stomach pains since our trip to Winnipeg in September. In the last two week period, the pains had become more frequent. He had been examined by his pediatrician on November 15 and she thought that it may be stomach acid.
When we got him to the hospital, he was still in so. much. pain. So much pain. First an x-ray. Then an ultrasound. Then another ultrasound (they saw a “mess” in his abdomen and they figured that it was a ruptured appendix). The surgeon arrived now (not his normal surgeon, but the one on call), and he said that he didn’t think it was a ruptured appendix, but rather internal abscesses or a bowel that had turned on itself. Moses needed an IV to do a CT scan that required a special dye. The CT scanned confirmed that he did indeed have several (6-7 intra-abdominal abscesses). Then they did a third ultrasound so that they would have a baseline ultrasound with which to compare the subsequent ultrasounds since the radiation associated with ultrasounds is much less than CT scans.
Before the CT scan, they ordered him morphine for the pain. As my readers will know, both DH and I try to do things as “natural” as possible for Moses. DH had previously discussed how awful a drug morphine is (from his experience in seeing his dying father on morphine). And I had learned during my Dying Consciously workshop that if at all possible to avoid morphine for a variety of reasons. Yet in seeing Moses in so. much. pain, we knew that he needed morphine. He fell asleep soon after his first dose and DH and I were able to catch our breath.
When we found out about the intra-abdominal abscesses, we were distressed. This is the first time that Moses has developed internal abscesses. It’s one thing to deal with abscesses on the surface of his body (which are not fun), but another thing entirely to be dealing with internal abscesses. Abscesses that cannot be seen or monitored without ultrasound or a CT scan. I’ve seen how difficult it is to deal with surface abscesses, but with an internal one, it’s completely different. From my reading and consultation with one mother of a child with Job’s syndrome who had an intra-abdominal abscess, surgery is typically the way to resolve them. But, Moses’ case was complicated since it involved several abscesses. If it had just been one abscess, the surgeon could go in through the rectum. But with so many abscesses, that would not be possible and they would need to go in through the abdomen. It would be a complicated and invasive surgery, which Moses would need recover from and fight any additional sources of infections. In fact, most intra-abdominal abscesses are caused by abdominal operations! So, his surgeon wanted to see if they might resolve by antibiotic therapy only.
Here’s is a summary of Moses’ progress every day, as documented by emails that I sent to my family and friends:
We had a very difficult day. It turned out not to be a ruptured appendix, but 6-7 abscesses (some as big as 6 cm) inside his abdomen and 3 other external ones.
Even the morphine in the evening wasn’t enough to help his pain.
They have him on 3 types of antibiotics to hopefully help with the infection and to decrease the size of the abscesses. If necessary, he will need surgery.
We’ll likely be in the hospital for at least a week.
Pray for ease and healing for Moses and for us all. Pray for an easy and gentle resolution.
Moses is still having intermittent pain, but they have also found a different pain medication that is not morphine, which I’m pleased about since Moses was starting to hear voices, was nauseous and vomiting from the medication.
Some more good news – yesterday, his white blood cell count (wbc) was 26, which indicated that he was fighting an infection. Already, his wbc count is at 8, which is in the normal range. Really miraculous considering that the surgeon said that he didn’t expect that it would drop that quickly or significantly.
Plus, he was able to walk to the bathroom unassisted this afternoon (whereas yesterday, we were carrying him).
And, he ate a whole piece of roast beef for lunch (whereas yesterday, he only ate a few “organic” gummy bears).
Such great signs of healing.
Day 3 am
I attended a meditation circle last night and received a vision of Mother Mary holding Moses in her arms. Each of the abscesses were removed and grew into a beautiful flower, and she bathed him in beautiful, magnificent Christ light…
Good news – he napped for a few hours yesterday afternoon, and slept from 10 pm to 3 am and then from 6 am to 8:30 am, so that’s more than the night before.
But the hours from 3 am to 6 am were brutal and he needed more morphine.
He’s been throwing up this morning, and so they are going to give him some medication to coat his stomach. The pain medication may be irritating his system.
Dominique, I brought your painting, Lakshmi, into the hospital room. She has a beautiful healing presence, and I can also feel you with us.
Thanks for your continued prayers and support. I appreciate all of the energy healing, but now I’m getting the message that rather than active energy healing, please just focus on prayers and visions of healing and positive intentions.
Day 3 pm
A quick update – Moses had a mixed bag of a day. Some very difficult moments.
And other times when Moses was in great spirits, when the pain had subsided.
I have a feeling that this will be a long haul. From what I’ve been reading from others’ experiences, the minimum amount of time in the hospital is around 3 weeks.
I left the hospital tonight feeling optimistic. Moses was not in pain and we decided to defer the morphine until he really needed it.
Day 4 am
Moses had a better night last night and was able to make it through the night without morphine.
My mom shared a vision of all three of us sitting in the palm of Jesus’ hand. She feels that at peace and all will be okay. I am strengthened by her vision and all of your love and prayers.
Day 4 pm
Moses had a much better day today. A lot less pain. He needed morphine once, but it was effective this time. Often times, just placing our hands on his belly is now being a comfort to him (whereas before, it did not).
He has started to run a fever, which is causing us a bit of concern. The antibiotics have also caused diarrhea.
His IV fell out, which means that it needed to be re-inserted (not fun), but they did eventually get it in.
On the good side of things, he was able to have a shower with the IV out and I feel that time with the warm water on his body was very healing.
He moved around a lot more today, and ate a little bit.
Overall, a lot better day.
The surgeon doesn’t plan to ultrasound his belly until early next week, so it appears that we will be in the hospital for awhile. They have arranged for a teacher to meet with him when he is feeling up to learning.
Day 5 am
Moses had a relatively good night last night with minimal pain for most of the night, but then has been having very bad diarrhea 3-7 times an hour (a side effect of the antibiotics). So bad that he’s now wearing a diaper since it’s hard for him to control. And now he’s having pain associated with the diarrhea.
He needed morphine twice in the last 24 hours, which is not bad considering that he’s allowed to have it every 4 hours. He tries to avoid using morphine as he feels that it temporarily (but significantly) increases the pain for the first 30 minutes.
The surgeon plans to aspirate (drain with a syringe) both of the abscesses in his armpits today at 2 pm.
On the good side of things…. he is able to walk to the bathroom on his own and is less nauseous. He hasn’t vomited in the last 24 hours. He no longer has a fever.
He was in a good mood, joking around, and playing with his cars this morning. This is a positive development as previous to this, he was so nauseous and dizzy that he couldn’t lift his head off of his bed or sit upright.
Day 5 – pm
Moses had the best day ever today. He was up and playing and his typical playful and joking self.
The drainage of the armpit abscesses (2 on the left and 1 on the right) went well.
Oh, yes, and his appetite is now back! He ate with his normal appetite this afternoon and evening.
Yay, yay, yay!
Oh, and he’s been morphine-free for 24 hours now. He’s now just on Tylenol as needed.
Yay, yay, yay!
He’s now out of the diaper (only needed it in the early hours this morning), but still having diarrhea and associated pains every 20 minutes or so.
It feels like the pain associated with the abscesses has subsided and is now replaced with the pain associated with diarrhea, but thankfully that pain is not as long lasting or as intense.
Hopefully, the ultrasound of his belly will go as planned on Monday. We hope to have good news regarding that, or that the surgeon will explore surgery options.
Mel is getting run down now and is coming down with the flu…
Moses is definitely healing. He had his best night ever – just up twice, once to pee and once with diarrhea. He had one dose of Tylenol this morning and no other pain medication.
His blood and urine cultures from a couple of days ago were clear of infection.
His trips to the bathroom are becoming less frequent (~30-40 minutes or so) and not as painful. He is doing better and better. We bought some extra soft ultra plush toilet paper and some diaper cream for his bum, which is helping.
He’s in good spirits.
As you know, the plan is for them to take an ultrasound on Monday. The surgeon said if they are shrinking and Moses continues to do well, then they will stay the course. They want to avoid an abdominal operation.
So, my praying friends, please pray that they resolve quickly.
During my vision on Tuesday night at the meditation circle, when Moses was in Mother Mary’s arms, I saw them shrink over time and then they were transformed into beautiful flowers.
Moses had his ultrasound today. The abscesses are slightly smaller (the largest one was 6.5 cm across last week; now it’s 5.3 cm across).
He has his next ultrasound scheduled for Friday and then we’ll take it from there.
If it was anyone else, they would drain them, but the surgeon doesn’t want Moses to undergo surgery. He wants to be the least invasive as possible.
The surgeon talked for the first time about eventually discharging Moses, knowing that it’s important for him to be able to get back to his life. He talked about possible IV antibiotics as an outpatient basis, or possibly oral antibiotics. Let’s pray for the latter.
So, we’ll see what Friday brings…
On the good side of things:
- Moses is remaining in good spirits and pain is lessening all of the time. Even the diarrhea isn’t as painful. The last time he had Tylenol was yesterday morning. Appetite is good.
- He has been having great sleeps, only waking up once in the night.
- He spent some time with the teacher at the hospital today, and got some good work done. She was very impressed with him and had fun with our Moses. She said that the time that she spent with him really brightened her day. He worked on an assignment for school about Jack and the Beanstalk. He told me that he thought she had a crush on him.
- He was able to walk to the ultrasound room, which he enjoyed as he got to stretch his legs, was a change of scenery for him, and we bumped into his Taekwon do instructor, who works at the hospital;
- I’ve found a new modality of healing that I’m going to explore, which I feel optimistic about. I have a session scheduled for Monday (it can be done through distance).
Moses is still doing well, and his trips to the bathroom are becoming more normal (still loose, but not as frequent and not painful). People who have been visiting have been saying that he is getting better and better, more himself every day. Sleeping well. Appetite is good. In good spirits. Clinically, he’s doing great! I do feel that the prayers and support have been healing him and sustaining us all.
There are some other things that are going on. Suffice it to say that we still need prayers and love and support.
Grammie Millie is flying home tonight and can’t wait to have her support.
We hope to be out on Friday.
Day 12 (Friday, November 22 – today)
Moses is home. Yay, yay, yay, yay, yay!!!!!!!!!!!!!!!!!!!!!
He still has some abscesses in his belly, but they are smaller, and since he is doing so well, he has been discharged. We pray that with the grace of God, all will be well. He will see his energy healing chiropractor today and our naturopath on Monday, and I have a consultation about Moses with a German New Medicine practitioner on Monday. And now I can start using essential oils with him again. (The hospital has a scent-free policy, so I was unfortunately unable to freely use essential oils, although I was still putting a drop of frankincense on the bottoms of his feet twice a day). We know that a lot of healing can happen at home.
He’s in great spirits. So happy, so full of energy. He was dancing around the hospital room this afternoon. Uncle Mike and his Grammie remarked that they actually haven’t seen him this happy in a very long time.
And now, we rest, and still continue to pray and trust that all will be well. I have spent a lot of time reading up on German New Medicine and hope and pray that it will help to identify what is triggering all of Moses’ abscesses. I am also starting to be more aggressive with the essential oils. Moses is helping and has started to take some essential oil capsules internally (prior to this, he has never swallowed capsules before).
I am thrilled and thankful that he is home. A friend who visited us at home tonight remarked that you can’t even tell that Moses was just recently in the hospital. His energy levels are at his typical levels. He is happy and running around. So happy to be home.
Please continue to pray for our family as Moses continues to heal, and we all rest and recuperate.