When he was 4.5 years old, my son has been diagnosed with an extremely rare immune disorder, Job’s syndrome or Hyper IgE syndrome, which explains his extreme sensitivity. Below are some of my posts that are related to this topic.
Given that it is such a rare disorder, it generally takes years before Hyper IgE syndrome is diagnosed (average age of diagnosis is 11 years old). If you suspect that you (or your child) may have Hyper IgE syndrome, I would advise that you request to be assessed by an immunologist, or at the very least, request that your (or your child’s) IgE levels to tested. In my son’s case, they knew that Moses’ IgE levels were greater than 2,000 (which is considered “hyper”), but they didn’t bother to figure out how much greater than 2,000 it was. When they finally tested his actual IgE levels (in preparation for his immunology assessment), they learned it was between 59,000 to 72,000 IU/mL (normal is between 130 IU/mL). Crazy high! Had they conducted that test earlier, he would have been diagnosed at an earlier age.
In the big scheme of things and in our situation, I feel that our son’s diagnosis came at the perfect time because it was after we had already started Heilkunst homeopathic treatment, which I feel has been key in helping my son improve his health. If you want to know what supplements and alternative treatments we are using to treat our son, read this. Of course, I’m not a medical practitioner and I’m not qualified to offer you any medical advice. I am a mom who is sharing my experiences in the treatment of our son.
Tips for living with Job’s syndrome (a compiled list of tips from numerous individuals with Job’s syndrome)
Miracle Mineral Solution (MMS)
Research on vaccinations and Job’s syndrome
Thoughts about vaccinations after our son’s diagnosis
Job’s syndrome diagnosis confirmed
November 2011: Good news — one year after my son’s diagnosis, his IgE levels have decreased to 22,311 16,612 (still very high, but dramatically lower than what it was a year ago). Read more here.
My son’s current supplements and treatment plan
See how another holistic mom is treating her son’s Job’s syndrome
Comments on: "Job’s Syndrome" (2)
I also have hyper IgE syndrome n it is so bad at the moment that i am about to give up on life completely. I also recently found out i am pregnant and am terrified i will pass this on to my child. I cant find any doctor that can really help me. I am in illinois and would greatly appreciate any more advice u can give me. Thank you.
Hi Kelly: So sorry to hear that it is so bad for you at the moment. I have shared exactly what we have done for our son that has helped him on this page. It hasn’t been an easy journey, but he is healing. http://crystalchild.wordpress.com/supplements/
I highly recommended Heilkunst homeopathy. I know that many Heilkunst homeopaths treat people through phone consultations and then can send you remedies that you might need. My son’s homeopath would be happy to help you. I also highly recommend MaxGXL (a supplement that increases glutathione levels). http://glutathioneforhealth.wordpress.com/ Both methods may result in healing reactions though, which means that temporarily things get worse before they get better. But, they actually result in true healing…
I would be happy to offer you a distance energy healing session, if you think this would be of interest to you. I can offer it to you for free, or by donation.
Or, I would be happy to chat with you on the phone to offer you any support that you might want. My email address is spirityoga@live.com.
I really believe true healing can happen.
Take good care,
Janice