We received some great news about Moses’ recent blood work. Over the years, we have really build a great rapport and mutual respect with all of Moses’ doctors and we have grown to love his allergist/immunologist and she us. She has said many times how amazed by how well Moses is doing, and she feels that it’s a reflection on all of the research that we do and she can see how well Moses is doing under our care. This was the same doctor who thought we were crazy when Moses was 3 years old because she thought we were under-medicating him. We have truly come full circle.
It’s been years since Moses’ last major immunological blood work (the last time was probably when he was diagnosed when he was 4 years old). To make a long story short, all of his blood work came back with great results. Everything came back normal (except for his IgE levels and eosinophil levels, which is to be expected based on his diagnosis). Liver function, lymphocyte function, auto-immune function, total protein levels, total T cells, IgA, IgM and IgG are all normal. Many other markers were normal too. Yay, yay, and yay.
We were particularly pleased that Moses’ IgE levels are now at 18,044. Although his IgE levels are still through the roof (100 is considered normal, 2000 is considered “hyper”), DH and I happy that his IgE levels were lower than they had been when they were tested in Nov 2012 and 2013 (when it was measured at >20,000). Yay, yay, yay!!!
Other great news is that Moses has normal levels of antibodies for Pneumococcal (likely because he has had pneumonia on several occasions). I’m sooooo happy about this news. DH would like Moses to receive the Pneumococcal vaccination and I haven’t been supportive of the idea (read why here and here). We discussed the issue with his immunologist and I explained that Moses reacted negatively to the MMR vaccination and that we have talked to people with Moses’ diagnosis who had severe reactions to the Pneumococcal vaccination (i.e., immediately requiring hospitalization and IV antibiotics due to severe infections). His immunologist is going to research more about it and get back to us, but I felt that she was reasonable in her response (i.e., she wants to consult with some others who are more experienced with dealing with HIES patients before making a recommendation). In any case, this buys us more time, for which I am thankful.
Overall, it was a great day and we’re so pleased!