Raising a Sensitive Child

Nourishing Body, Mind and Spirit


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A year in review – 2015

2015 was an amazing year for the family for so many reasons.

The highlight of our year was definitely when Moses’ wish to meet the Vancouver Canucks was granted by Make-a-wish in April!

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Moses with Daniel Sedein

Overall, this has been Moses’ healthiest year and our whole family has had a more “normal life”.

That said, this year hasn’t been without its challenges.

  • Moses developed pneumonia in April, immediately after meeting the Canucks.
  • He had a severe allergic reaction on his 9th birthday in May.
  • He spent one night in the hospital in November, after having general anaesthesia to have some abscesses drained.
  • Overall, abscesses continue to be an issue. He developed a total of 53 abscesses in 2015. On the positive side of things, most of the abscesses either spontaneously drained or otherwise disappeared on their own. His surgeon drained 7 of them (one was a minor incision and 6 needed general anaesthesia on two occasions), and he currently has 4 that are unresolved.

For context, we consider this a better year since in 2014:

  • Moses spent 3 days in the hospital in January getting a dozen intra-abdominal abscesses drained, and 7 days in the hospital in May with a UTI infection.
  • And, in 2014, he developed 67 abscesses between the end of March and the end of the year: 41 abscesses that have drained spontaneously, 17 that needed surgical intervention (2 general anesthesia for 11 of them, and 6 under local), 9 that disappeared on their own.

In October 2014, we started back with Heilkunst homeopathy after a 2 year break, and I really feel that made a difference in Moses’ health. In April 2015, we switched to a new Heilkunst practitioner and I have been very pleased with Moses’ progress with our new practitioner. The healing reactions have been a lot milder and we have received great support from her. I am so pleased.

Moses’ main symptoms are the recurrent abscesses, but as I mentioned, this year, he developed fewer abscesses and more of them resolved on their own. Thankfully, Moses also has a surgeon who has really worked with the family to minimize hospitalizations and has not pushed for IV antibiotics (unlike some of Moses’ other doctors in the past). We feel so blessed.

I’m a bit anxious because Moses’ immunologist has recently suggested a new prophylactic antibiotic to help with the recurrent abscesses (you can read more about that here).

In addition to Heilkunst treatment and monthly sessions with a chiropractor, who does cranialsacral therapy on Moses, we have continued to receive karmic healing sessions with a healer in California. I’ve been trying to minimize the number of sessions because her sessions are ridiculously expensive (painfully expensive) and the weak Canadian dollar isn’t helping. In 2015, Moses had three sessions with her, I had two and DH had one. I used to blog about our sessions but her work is really out there, so recently, I haven’t been openly sharing about those sessions. I have another karmic healing session booked for Moses in early January. I do still feel like her work is relevant to our family’s healing journey, and I practice her grounding exercises several times a week.

So, that’s where we are right now. As I mentioned, overall, Moses has had a very healthy year. He is vibrant and strong. He is playing hockey!!!  I feel that our family is definitely healing together.

I feel so blessed and am so pleased. May 2016 be an even healthier year for our family. So be it, and it is so.

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Happy holidays from our family to yours

* I didn’t write a year in review in 2014, but this was one of my last blog posts in 2014, which summarizes where we were in our healing journey a year ago.


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Visit with our naturopath – December 2015

As I mentioned in this post, we recently had a visit with Moses’ naturopath, who we love.

Since Moses doesn’t see her very often (every 6-12 months), she has a long view on Moses’ healing and she also knows where he started from since we started seeing her when Moses was 3 years old.

I always find it’s a good “check-in” and helps me to affirm that we’re on the right track.

The main things that came out of this appointment include the following:

  • Overall, Moses is doing well!
  • We’ll consult with Moses’ dentist about her thoughts on Doxycycline;
  • I’m going to start Moses back on CD baths (perhaps it’ll help with the recurrent abscesses);
  • I’ll start using the sublingual vitamin B with Moses (something that his Heilkunstler suggested, but Moses doesn’t like the taste, so I got out of the habit of doing); and
  • we’ll start him on a good multi-mineral supplement (Genestra Colloidal MultiMins Liquid). (The MultiMins Liquid is sweet and tastes like a melted orange popsicle, but for some reason, Moses doesn’t like the taste. ugh).

She thought the vitamin B might help with the chronic cracks that Moses has in the corners of his lips.

I’m thinking the CD baths might help with the recurrent abscesses. We got out of the habitat of doing so because truthfully, we’ve been doing diluted bleach baths (as per the recommendations of Moses’ dermatologist and immunologist), but I think the CD baths would be more effective for his abscesses. Unfortunately, I was too enthusiastic on the CD bath yesterday, and today, on Christmas eve, Moses isn’t feeling well (I think a die-off response to yesterday’s CD bath*). It’s a good reminder for me that slow and steady wins the race. ugh!

* Last year, Moses routinely had 20 drops of CD in his bath. Yesterday, I started with 10 drops, and then he had a second bath with 12 drops. This was evidently too much to start with.

 

More reading:

  • Read about our last naturopath appointment in July 2014 here.


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“Maybe one day, he’ll grow out of it”

It’s well-intentioned, but it makes me cringe when people comment that, “Maybe one day, Moses will grow out of it”.  “It” being his immune disorder.

Most people in our lives have noticed that Moses  has become healthier as he has gotten older and have assumed that he is just growing stronger as a matter of course because he is aging.*

I can appreciate what people are saying, but still it makes me cringe because I feel that it belittles our family’s healing journey and the seriousness of his diagnosis.

Moses has not simply grown out of his immune disorder. We have been very intentional in our family’s healing journey. We have worked hard to get him to where he is. We have spent thousands of dollars, conducted many hours of research, tried countless modalities of healing, consulted with numerous specialists (conventional and non-traditional), followed our intuition, and have forged a middle ground where both DH and I now feel comfortable (in terms of balancing western medicine and alternative therapies). As my long-term readers will know, I personally feel that out of all of the things we have tried, and we have tried many, Heilkunst (sequential homeopathy) has addressed the root cause of Moses’ genetic disorder, and has healed him at a very deep level. We are reaping the rewards of our hard work. But it has been far from an easy journey.

Sometimes, I let people know that we are using homeopathy to heal Moses, but I find that most people’s eyes glaze over when I talk about things that are outside of the realm of western medicine. So, it is often easier just to smile and say, “Yes, he is getting stronger as he is getting older. We’re so pleased.”

It’s one of the reasons that I’m thankful that I have an outlet for all of my thoughts about our family’s healing journey. And, I’m thankful to those of you who are regular readers of my blog and can understand our journey, know how far we have come, and why.

 

*Although I blog very publicly about his healing journey, I have only shared this blog with a very small number of people who actually know Moses. I am thankful to all of you who are witnessing and supporting his healing journey.

* As Liz lovingly said in her comment below, “In the end, it really doesn’t matter what other people think and I feel truly blessed to have found Heilkunst.” This is truth.

* This is an excellent post by Finding my Kid about this very topic.


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Doxycycline?

I haven’t quite been myself lately because I’ve been worried / thinking about a recommendation for a new prophylactic antibiotic that Moses’ immunologist has suggested.

Moses has been on a prophylactic antibiotic (Keflex) since he was four years old. That means that he’s been on a twice daily antibiotic for five years. Goodness.

I have mostly come to accept it because, well, it’s what we are doing, and it doesn’t make sense for me to inwardly fight something that we are giving to our son everyday (read more about why/how I came to terms with it here). The compromise that DH and I have is that we are following some of the advice of the doctors, and we are also treating Moses with other therapies (like Heilkunst).

My hope is to eventually get him off of his prophylactic antibiotic, but I know that I won’t get buy-in from DH during the winter (cold/flu season), so my only hope is during the summer. This last summer, Moses’ eczema seemed extra flared up, so there wasn’t a good time to take him off of it. We actually have tried on three other occasions to stop the antibiotic, and twice, he got sick afterwards and another time, his eczema flared up, so we started him back on it.

In any case, my plan is to eventually get him off of his prophylactic, and not to start a new one. During Moses’ last appointment with his immunologist, she mentioned that she has been talking to a Job’s syndrome specialist in the US and his infectious diseases specialist, and they think it would be worth starting him on Doxycycline because it might give him protection from the recurrent abscesses that he has getting.

The downside to Doxycycline (besides the fact that it’s an antibiotic that is used to treat illnesses such as malaria [!!]) is that is causes permanent yellow / brown staining of teeth. As a result, it’s not recommended for children under 8 years old. Moses is 9.5 years old, so he’s not under 8 years old, but all of his adult teeth haven’t yet come in, plus Moses’ teeth are not healthy to begin with (likely because he’s been on a twice daily prophylactic antibiotic since he was 4 years old!!). The teeth discoloration that is caused by Doxycycline is permanent because the damage occurs while calcification of the teeth are occurring and teeth remodeling and calcium exchange do not occur after calcification is completed (Source).  I have no interest in putting Moses on a long-term medication that I don’t even want him to be on in the first place, but especially one that can cause permanent staining of his teeth. Call me superficial, but that’s a deal-breaker to me.

Anyhoo – thankfully, DH doesn’t seem to be keen on changing Moses’ antibiotic either, but all of these discussions are stirring up anxiety in me.

Interestingly, our Heilkunstler intuited that Doxycycline would be the “lesser of the two evils” between the two antibiotics. hmmm.. That gives me food for thought.

I scheduled an appointment with Moses’ naturopath so we can discuss my concerns. I love our naturopath and she’s like a counsellor to me. I love her wisdom, intuition and how she bridges the gap between traditional medicine and alternative treatments. She told me that she didn’t intuit that Doxycycline would be negative for Moses, but when she read up on it, she didn’t feel as good about it (i.e., the incidence of staining for long-term treatment with doxycycline is 100%). She did pointed out something that I noticed as well – that some doctors recommend waiting until children are at least 12 before starting this antibiotic (i.e., waiting until all of their teeth have erupted). She did recommend that we consult with Moses’ dentist to see what she has to say, which we plan to do.

Note that even after the permanent teeth are in, Doxycycline still causes staining of teeth that can be reversed by abrasive scrubbing at dental check-ups. Oh boy.

Update – January 29, 2016

We consulted with Moses dentist and she said that since Moses’ teeth are formed under his gums, there is no risk of permanent staining (with the exception of his wisdom teeth, which are not yet formed).

We consulted with his infectious diseases specialist, who we love and trust about starting the medication. She chatted with DH about it for 20 minutes on the phone and put some of DH’s concerns to rest.

Our chiropractor muscle-tested that Doxycycline would be “better” for Moses than the current prophylactic antibiotic that he is on.

I asked another individual with Job’s syndrome about her experiences with being on Doxycycline and she said that she thinks that it’s help to reduce some of her infections.

Given that Moses had a brutal January (i.e., he needed general anaesthesia twice within 12 days to take care of abscesses), we are open to trying this new antibiotic.

I am still not happy about him being on a prophylactic antibiotic, but given the compromises that DH and I navigate in Moses’ treatment, I’m come to terms with starting Doxycycline and we’ll see how he does. I’ve made it clear to DH that I eventually want Moses off of any prophylactic antibiotics, but I don’t have buy-in from him yet….

February 9, 2016

Started Moses on Doxycycline today. He’s taking a half tablet daily (50 mg, which is a prophylactic dose) – for his weight (30 kg, a prophylactic dose would be 60 mg, according to his infectious disease specialist [i.e., 2 mg/kg once a day to a maximum of 100 mg], but a half tablet is easier to dose than 3/5 of a tablet). According to this document, a therapeutic dose for his weight would be 75 mg twice a day (i.e., 150 mg per day, so he is only getting 1/3 of a therapeutic dose. This makes me feel better about him being on it. He needs to take it away from any supplements or calcium, otherwise, the medicine will not be effective. Wish us luck.

December 7, 2016

We recently moved to a new city and Moses had a consultation with his new infectious diseases specialist. They have cultured Moses’ MRSA infection and it is resistant to Doxycycline, so we can stop Doxycycline. I’m so happy!!!!  Moses has been on a prophylactic  antibiotic since he was 4 years old. That’s six full years of taking a prophylatic antibiotic. It’s an answered prayer to get him off if it. Thank goodness!!!!

More reading on doxycycline


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December 2015 (my Heilkunst update)

This is a summary of my Heilkunst (sequential homeopathy) update from mid-October to early December, 2015. Read more about our Heilkunst journey here.

On October 15, I started the following droppers:

1) Colchicum 12C – (Physical – Itchiness/Rashes/Digestion/Acne/Allergies/Sore throat/Allergies/Plantars warts/Neck and shoulder pain/TMJ) – a drop a day

2) Helod. 200C – (Emotions – Stress/Anxiety) – a drop a day

3) Scam. 1M – (Mentals – life purpose/coping skills) – a drop a day (can also take as an acute for itchiness by adding a drop to water bottle or glass and sipping throughout the day)

My Heilkunstler didn’t give me any miasm wafers this time as she wanted to give my body a break after last month’s intense clearing.

The day after I started the new droppers, I was still itchy. Itchy enough to reach for Benadryl. Five days later, I was still itchy and I developed a new rash on the left side of my neck and on my torso. Goodness. DH made a joke that my “leprosy” was back (referring to a weird rash that I had in 2011) which is kind of ironic because he had no idea that I cleared the Leprosy miasm homeopathically last month (a cosmic wink). Upon seeing the rashes on my neck, my physiotherapist asked me if I have psoriasis or eczema. He was surprised when I told him that these rashes were completely new and related to a homeopathic healing reaction.

Something that I have been noticing since last month is that I’ve been “running hotter” (i.e., I used to always be cold, but now, I’m going to bed in a t-shirt and shorts, rather than long flannel pajamas). And I’m hot all day long. (Is this related to peri-menopausal symptoms, or part of the clearing reaction)?

Two weeks after starting the new droppers, I was feeling happy and content. Still itchy, but happy.

Two and a half weeks after starting the new droppers, I was crazy itchy. So itchy that it was disruptive to my yoga practice. So uncomfortable in my body.

These last notes were written in early November, when I stopped keeping close track of my healing reaction. 

***

It’s now early December. Happily, I am no longer itchy and my rashes have subsided. I just have some small scattered scars in some places.

I have decided that I’m officially having peri-menopausal symptoms (feeling hotter, my metabolism seems to be changing, my breasts have felt heavy and sore). I spend a lot of my time turning off our pellet stove that DH likes to have running all of the time. I have discussed some of these changes with my naturopath and one of my dear friends and have been coming to peace with these changes. This can be a time of empowerment / a “second spring” / a “time to pick up where I left off when I was 12 years old”. A time to create something new.

I have been decluttering and letting go. I love Marie Kondo’s book, The Life-Changing Magic of Tidying Up. I have been following her advice and letting go of things that do not spark joy. I’m still in the process of going through our stuff, but a lot of things have been leaving our home. Clothes, books, toys, etc. Most significantly, I have let go of all of my journals / writings / notes about Moses’ healing journey and my own. All gone – well, except for the 500+ posts on this blog (haha!).  I have also let go of my energy healing notes and teachings. There is still more to clear, but it feels like some significant space has been created.

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I have been going through some significant changes / reflections about my work. There is much uncertainty at my place of employment and I have had a significant slow-down in my work. We are living in interesting times. My intuition is saying “enjoy this slow time”. All will be okay.

I had an epiphany about a week ago that “all of my dreams have come true”. Moses is healing / is healed. DH and I have been enjoying ourselves and each other. We have some great friends, and heart-connections. Our family is healthy. We have a beautiful home, and live an abundant life. I am grateful, and feel ready to create some new dreams.

So, that is where I am at right now.  All is well. And it is so, and so it is.

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DH and me and our moms, during my mom’s visit in October

 


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December 2015 – Moses’ Heilkunst update

This is a summary of Moses’ Heilkunst (sequential homeopathy) update in November / December 2015. Read more about our Heilkunst journey here.

On Thursday, November 12, 2015, Moses started the following droppers.

1) Pte. 10M – (Mentals – Pessimism/Sleep/Night Terrors) – a drop a day

2) Jeq. 200C – (Emotions – feeling picked on) – a drop a day

3) Corn. a. 12C – (Physical – abscesses/cysts/styes on the eye/asthma/Allergies/Itchiness/Rashes/dry scalp /Ear fissures/Thrush on mouth) – a drop a day

Two days later (Saturday), the stye on Moses’ left eye was larger. He had a night terror later that evening.

On Monday, he had a runny nose and had a slight tickle in his throat.

On Tuesday, he came home from school early with an intense stomach ache that subsided with a bath while I diffused an essential oil blend that helps with stomach upset. Later that evening, he was coughing and needed to take his Ventolin puffer.

On Wednesday, we cancelled his pulmonary function test (again – Moses has a pattern of having congestion when he has a PFT scheduled) and kept him home from school because he had a headache, stomach ache and a cough. He didn’t seem terribly sick, but he definitely wasn’t himself. Later that evening, he complained of stomach pains again.

And he stayed home on Thursday again because of stomach pains, a headache and feeling like he wanted to throw up.  But, it seemed like he was on the mend. He was back at school on Friday and played hockey on Saturday and Sunday.

On Sunday, Nov 22, he developed a new small abscess on his right armpit, but it was already coming to a head. He also had stomach pains and diarrhea. (An allergic reaction to something? Cross contamination? A healing reaction to the major decluttering that I was doing in the home? Interestingly, Marie Kondo mentions in her book, The Life Changing Magic of Tidying Up, that some people have diarrhea or other healing reactions after decluttering, and Moses’ stomach pains were the most intense when I was working in his room. hmmmm…). Two days later, the new abscess burst on its own (while Moses was at school and at a time when DH had two meetings and I was at a physiotherapy appointment) – nonetheless, it all worked out.

On Wed, Dec 2, seemingly out of the blue, Moses developed a huge abscess in a sensitive area, but great news – it burst on its own the very next evening. Woot woot! By Sunday, it was looking better, but the area was still sore to touch. Later that day, Moses complained of an ear ache on his left ear, but within minutes of an application of helichrysum and melaleuca essential oils, the pain was gone. Pretty amazing.

This was Moses’ 36th Heilkunst session. All in all, it was a relatively easy month with respect to healing reactions, and Moses was healthy and well. Slow and steady wins the race.

Gifts

  • Moses scored his first goal in hockey. Woot woot!
  • The afterschool care staff mentioned how calm Moses is.
  • He did great on his report card (with the exception of some problems with focus). He is very, very bright, which is balanced out by the fact that he is also very lazy. We’re proud of him.
  • A friend of mine commented on how vibrant Moses is. How truly healthy he seems.

 

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Moses and with Jack, the elf