Raising a Sensitive Child

Nourishing Body, Mind and Spirit


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“I am” poem

Love this poem that Moses wrote for school. The teacher provided the first part of each line for inspiration and he filled in the rest.

“I am” by Moses

I am nice and kind.
I wonder about my school.
I hear the wind whistle.
I see Vancouver.
I want to play in the NHL.
I am nice and kind.

I pretend I am superman.
I feel the sand on a beach.
I touch my pet, Slim Jim. (His skinny pig)
I worry about Newfoundland.
I cry for my Grandpa Joe.
I am nice and kind.

I understand about moving.
I say, “You are awesome”.
I dream of Newfoundland.
I try to be in the NHL.
I hope that I could hug my gram. (Both of them.)
I am nice and kind.

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The impact of a wish come true…

DH recently wrote this email to Make-a-Wish:

“Just wanted to give you an update on how Moses been doing since the big wish. We’ve had so many people tell us how healthy looking and confident Moses has been since his Vancouver experience and we can see it ourselves. He still has his health issues, Job’s Syndrome is still a part of him, but his health issues seem to be in the background and do not define him.

I used to looked at him and see a sick child with a huge spirit that fought every day to live a “normal” life. Now I see independent kid who is wise beyond his years and capable of doing anything he sets his mind to.

Whether you know it or not, the work you do has an immeasurable impact and is more effective than any medication. You’ve made a huge difference in our family’s lives and we just wanted to say thank you.

p.s. Moses registered for hockey this year for the first time. A year ago we would have never considered it but he’s convinced us he’s ready for it.”

Read more about Moses’ wish here.

***

The impact of a wish…

Did you know…

According to the results of a 2011 – 2013 Wish Impact Study that involved interviewing wish parents, past wish kids, health professionals, and volunteers, a wish come true empowers children with life-threatening medical conditions to fight harder against their illnesses.

When wish kids are granted a wish, they get more than just a great experience for a day, two days, or a week. That experience improves the quality of life for them and their entire family.

Health professionals treating them say the wish experience is an important adjunct to medical treatment, and they observe their patients feel better and comply more readily with treatment protocols when they experience their wish come true. And the community volunteers who grant wishes say the wish granting process heightens both their ability to see the best in others, and their commitment to actively help more people in need.

Adult former wish kids say the wish experience made them feel better socially and emotionally, improved their health and strength, gave them more confidence and the will to pursue more challenging life goals, made them more compassionate and philanthropic, and even helped to save their lives.

Find out more about the Wish Impact Study here.


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Pizzaiolo for a day!

Moses created his very own pizza at Piatto Pizzeria named after himself. Chicken, roasted red pepper, tomatoes, onions and feta cheese. Super fun and delicious!!! A portion of the proceeds from the sales of Moses’ pizza will be donated to Make-A-Wish!

Pizzaiolo for a day!

Pizzaiolo for a day!

Spreading out the dough

Spreading out the dough

Adding the chicken

Adding the chicken

He made his own version with a glutenfree crust and a dairy-free cheese

He made his own version with a glutenfree crust and a dairy-free cheese. Delicious!

Enjoying Moses' pizza with good friends

Enjoying Moses’ pizza with good friends


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Grade 3

So proud of our Moses, who made it through Grade 3 with flying colours. He did really well in school this year, despite the fact that his motto is to work as minimally as possible and the fact that he doesn’t enjoy reading, writing or school work. But, he’s so bright, has amazing comprehension, and has a computer brain that remembers everything, so he did phenomenally well overall. This year was his best report card ever. So proud of him!

He also enjoyed Grade 3 because he made some good friends. In the past, he was very shy, and he seemed to come out of his shell this year and gain some confidence. It’s been such a joy to witness him joking around and hamming it up with his friends.

Another amazing thing about Grade 3 was that it was the very first school year that Moses did not need to be admitted to the hospital. We are so pleased!! He still missed 4 weeks of school due to illness, but he was able to rest and recover at home. So thankful!

What a year, it has been!

Enjoying a walk through the woods with one of his buddies

Enjoying a walk through the woods with one of his buddies

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* I really feel that Heilkunst has helped Moses at school. I feel that it helped him socially, behaviourally (in past years, he struggled with focus, listening and completing work during the allotted time) and also cleared some brain fog. So thankful!

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A wish come true…

Moses was granted a wish from the Make-a-Wish foundation earlier this month. What an amazing experience it was.

You can read all about his wish here (news of his wish made our local paper!), and you can even watch a video clip about his wish here (this video clip was actually broadcast on TV across the country earlier this month) and the hockey team created this moving video about Moses’ wish here.

An amazing welcome to Vancouver from Enterprise Rent-a-car

An amazing welcome to Vancouver from Enterprise Rent-a-car.

Red carpet welcome at the Fairmont Hotel

Red carpet welcome at the Fairmont Pacific Rim. The staff were tremendous and made Moses’ wish extra special!

His favourite player's number made with allergy-friendly dark chocolate. Even the plate is made of chocolate!

His favourite player’s number made with allergy-friendly dark chocolate. Even the plate is made of chocolate!

Zip-lining at Grouse Mountain

Zip-lining at Grouse Mountain

Moses with his favourite player

Moses with his favourite player – what an amazing, warm, kind and generous-hearted man he is.

The team cheers after Moses scores a goal!

The team cheers after Moses scores a goal!

Moses and his favourite team!

Moses and his favourite team!

Assistant trainer at the professional soccer game!

Assistant trainer at the White Caps soccer game!

High fives to all of the soccer players before the game!

High fives to all of the soccer players before the game!

Gorgeous view from our room, while Moses recuperated from pneumonia for five days.

Gorgeous view from our room of Grouse Mountain and the ocean, while Moses recuperated from pneumonia for five days.

English Bay

English Bay

The hollow tree at Stanley Park

The hollow tree at Stanley Park

Quiet

Quiet healing time in the forests at Stanley Park

We were the recipients of thousands of kindnesses from:

  • Westjet, who flew our family across the country and allowed us to delay our return to back home due to illness;
  • Enterprise Rent-a-car, who met our family at the airport with a most amazing welcome and let Moses choose the car that we used for the week (a full-loaded Infiniti Q50!);
  • Fairmont Pacific Rim hotel, who treated Moses like royalty and spoiled our whole family, and also allowed us our family to stay an extra five days in their gorgeous hotel while Moses recuperated;
  • two special teams and all of the players who made his wish extra special;
  • all of the donors and sponsors who support Make-a-Wish; and
  • so many others….

We are so tremendously thankful!

****

Wish Impact Study

According to the results of a 2011 – 2013 Wish Impact Study conducted by our American affiliate that surveyed wish parents, past wish kids, health professionals, and volunteers, a wish come true empowers children with life-threatening medical conditions to fight harder against their illnesses.

When wish kids are granted a wish, they get more than just a great experience for a day, two days, or a week. That experience improves the quality of life for them and their entire family.

Health professionals treating them say the wish experience is an important adjunct to medical treatment, and they observe their patients feel better and comply more readily with treatment protocols when they experience their wish come true. And the community volunteers who grant wishes say the wish granting process heightens both their ability to see the best in others, and their commitment to actively help more people in need.

Adult former wish kids say the wish experience made them feel better socially and emotionally, improved their health and strength, gave them more confidence and the will to pursue more challenging life goals, made them more compassionate and philanthropic, and even helped to save their lives.

Find out more about the Wish Impact Study here.


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The birds are singing again

“The birds are singing in our living room and in our back yard.”

It feels like that statement sums up our lives at the moment. The birds are singing again.

In our living room…

We have two budgie birds, John and Yoko, in our livingroom and they are singing. They bring us such joy.

Over the summer, we had another bird, Ringo, who became sick with a brain tumour (poor bird) and it was sooooo terribly sad when the birds stopped singing. We didn’t have Yoko then and we needed to separate the two birds. John, bewildered, would spend all day over on the side of the cage, peering into Ringo’s cage, silent and watching and worried.

And Ringo would spend his days with his head heavy and would often fall off his stick, only to climb back up again. And again, and again.

It was a heartbreaking couple of months.

Now, we have a new companion for John, and it brings me such joy to hear them singing again.

Backyard birds

We live in a newer neighbourhood without many trees, but close to a green space. When we moved in, we planted a couple of new trees and put up a bird feeder. And then another. Over the years, we often had a pair of dark-eyed juncos who would visit our backyard, but something shifted towards the end of the summer. The pair of juncos must have told their friends because we started to have a multitude of birds show up in our backyard.

This year, we’ve had five blue jays, a northern flicker, a dozen or more juncos,  a chickadee, 20 or more starlings, a couple of crows, and even a sharp-shinned hawk visit our backyard. And, earlier in the summer, we had a big fat American robin and some of his friends, who ate the dozens of cherries on our cherry tree.

Three or so years ago, we planted a pear tree in our front yard. In the first year, it produced one small (inedible) pear. The seond year, it produced ~8 small pears, but we didn’t know how to ripen them. This year ~30 pears and we learned how to ripen them (put them in a pot with a lid along with a couple of ripe bananas). The pears were delicious! We are finally enjoying the benefit of all of the seeds that we have planted.

From our pear tree

From our pear tree

And that’s how our life feels – it feels like the birds are singing in our lives and in our hearts and all of the seeds that we have planted long ago – the seeds of healing for Moses, are now blooming. And it’s time for us to enjoy the benefits of our sweet life.


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Celebrations

Last week was Moses’ week to shine.

  • On Friday, he came home with a 29/30 in his math test.
  • On the same day, he received his swimming badge and notification that he was graduating to the next level.
  • On Saturday, he received a “Balance” ribbon in skating classes.
  • On Sunday, he started learning how to play the first few notes to a Christmas song on the guitar.
  • And yesterday, he came home with a 30/30 in his math test.

He was on a roll. We’re super proud of our little buddy. Super proud.


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Our hero – Part 2

A precule to the “super hero” story…

Moses has a cousin named Jack.

Last year, when Jack was in Grade 3, he wrote about how Moses was his hero. Jack wrote about how brave Moses is when he is sick and needs to go to the hospital, and how he hardly ever complains.

When Jack’s mom called me to ask for our permission for Jack to write about Moses, I was so touched that I wept.

I’m not the only one who recognizes Moses’ strength and bravery.

Best friends

Best friends and cousins (and best photo bomb ever)