Raising a Sensitive Child

Nourishing Body, Mind and Spirit


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Our super hero

A couple of weeks ago, Moses was the “Star Student of the Week”, and part of his assignment was to write about his hero.

Moses wrote about a fictitious character named “Moses Man”.

Moses Man is brave and strong and his super power is handsomeness.

He wears a shirt that has the letter “M” on it.

When Moses presented his news stories to his class,  his teacher commented that he was supposed to write about a real life hero.

Unperturbed, Moses responded…

“Well, when I’m an adult, I might be Moses Man one day.

I might be brave, and might be strong…”

Then he whipped off his glasses, and looked at his teacher with his sparkling eyes and a winning smile, and added, “And I’m already handsome”.

His teacher responded, “That’s a good point, Moses.”


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Happy and well

A friend shared this reflection with me today:

“Moses is looking well and happy these days!  The past couple of times I’ve seen him he’s looked so robust and energetic!!”

And, it’s true. That’s how I feel too. So great to hear these words reflected back at me. Feeling very optimistic.

Love this photo of Moses and I at the top of St. George's Cove Mountain in Holyrod

At the top of St. George’s Cove Mountain in Holyrod. We hiked up!


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Immunological update

We received some great news about Moses’ recent blood work.  Over the years, we have really build a great rapport and mutual respect with all of Moses’ doctors and we have grown to love his allergist/immunologist and she us. She has said many times how amazed by how well Moses is doing, and she feels that it’s a reflection on all of the research that we do and she can see how well Moses is doing under our care. This was the same doctor who thought we were crazy when Moses was 3 years old because she thought we were under-medicating him. We have truly come full circle.

It’s been years since Moses’ last major immunological blood work (the last time was probably when he was diagnosed when he was 4 years old). To make a long story short, all of his blood work came back with great results. Everything came back normal (except for his IgE levels and eosinophil levels, which is to be expected based on his diagnosis). Liver function, lymphocyte function, auto-immune function, total protein levels, total T cells,  IgA, IgM and IgG are all normal. Many other markers were normal too. Yay, yay, and yay.

We were particularly pleased that Moses’ IgE levels are now at 18,044. Although his IgE levels are still through the roof (100 is considered normal, 2000 is considered “hyper”), DH and I happy that his IgE levels were lower than they had been when they were tested in Nov 2012 and 2013 (when it was measured at >20,000). Yay, yay, yay!!!

Other great news is that Moses has normal levels of antibodies for Pneumococcal (likely because he has had pneumonia on several occasions). I’m sooooo happy about this news. DH would like Moses to receive the Pneumococcal vaccination and I haven’t been supportive of the idea (read why here and here). We discussed the issue with his immunologist and I explained that Moses reacted negatively to the MMR vaccination and that we have talked to people with Moses’ diagnosis who had severe reactions to the Pneumococcal vaccination (i.e., immediately requiring hospitalization and IV antibiotics due to severe infections). His immunologist is going to research more about it and get back to us, but I felt that she was reasonable in her response (i.e., she wants to consult with some others who are more experienced with dealing with HIES patients before making a recommendation). In any case, this buys us more time, for which I am thankful.

Overall, it was a great day and we’re so pleased!


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Vacation!

We had a great vacation in Calgary to visit the city where Moses was born and then to Winnipeg to visit my family. Highlights for Moses: seeing Grammie Rosie and Grandpa George, uncles, aunts, cousins and friends, lots of playdates, riding the luge at Canada’s Olympic Park, seeing the mountains for the first time in Banff, zoo, go-karting, amusement park, a trampoline park, Children’s museum and canoeing. Wow!

Highlights for me: visiting with so many dear friends and family, and especially visiting my mom and dad.

There’s really too many photos to share, but here are some of the highlights.

St. George's in the Pines in Banff, where DH and I were married in January 2006.

St. George’s in the Pines in Banff, where DH and I were married in January 2006.

 

Banff

Banff

 

Bow River

Bow River

 

Uncle Gregor and Auntie Janice

Uncle Gregor and Auntie Janice

 

Shelley Belly and me

Shelley Belly and me

Our Calgary family

So many new friends

Polar bear!

Polar bear!

Fun with cousins

Fun at the zoo

 

Fun with cousins

Fun with cousins at the Children’s museum

Me and my brothers

My brothers and me

My brothers and our families

My brothers and our families

Sharing a laugh with my niece

Sharing a laugh with my niece

Canoeing

Canoeing

Go-karting!

Go-karting!

 

Moses and Grandpa George and Grandma Rosie

Moses with Grandpa George and Grandma Rosie

Old friends

A very special reunion of friends with Cori and Stephanie

 

 


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Photo bombed by a seal!

Moses had so much today with his cousins, getting an exclusive tour at the Oceans Sciences Centre, and “helping” to train the harp seals. We had an exclusive behind the scenes tour that we won at a silent auction for Moses’ school.

So. much. fun!

When asked how much fun the morning was, the boys said that on a scale of 1 to 10, they had “infinity and beyond” in fun.

Cutest photo bomb ever!

Cutest photo bomb ever!