When he was 4.5 years old, my son was diagnosed with an extremely rare immune disorder, Job’s syndrome or Hyper IgE syndrome, which explains his extreme sensitivity. Below are some of my posts that are related to this topic.
Given that it is such a rare disorder, it generally takes years before Hyper IgE syndrome is diagnosed (average age of diagnosis is 11 years old). If you suspect that you (or your child) may have Hyper IgE syndrome, I would advise that you request to be assessed by an immunologist, or at the very least, request that your (or your child’s) IgE levels to tested. In my son’s case, they knew that Moses’ IgE levels were greater than 2,000 (which is considered “hyper”), but they didn’t bother to figure out how much greater than 2,000 it was. When they finally tested his actual IgE levels (in preparation for his immunology assessment), they learned it was between 59,000 to 72,000 IU/mL (normal is around 130 IU/mL). Crazy high! Had they conducted that test earlier, he would have been diagnosed at an earlier age.
In the big scheme of things and in our situation, I feel that our son’s diagnosis came at the perfect time because it was after we had already started Heilkunst homeopathic treatment, which I feel has been key in helping my son improve his health. If you want to know what supplements and alternative treatments we are using to treat our son, read this. Of course, I’m not a medical practitioner and I’m not qualified to offer you any medical advice. I am a mom who is sharing my experiences in the treatment of our son.
Tips for living with Job’s syndrome (a compiled list of tips from numerous individuals with Job’s syndrome)
Miracle Mineral Solution (MMS)
November 2011: Good news — one year after my son’s diagnosis, his IgE levels have decreased to
22,311 16,612 (still very high, but dramatically lower than what it was a year ago). Read more here.
A great map where you can see if others with Hyper IgE syndrome live in your area. If you have HIES, add yourself to the map (click here).